Chronic Illness

Biotoxin Illness
Ritchie Shoemaker, MD and his research team share new peer-reviewed medical research and clinical treatment protocols along with an online screening test for biotoxin illnesses such as CFIDS, Fibro and Lyme.
http://www.biotoxin.info

Center for Research on Chronic Illness
Current research by the Carolina School of Nursing, pilot projects, publications on specific diseases as well as in general on preventing and managing chronic illness in vulnerable people.
http://nursing.unc.edu/crci/

Chronic Conditions
Advice on managing the health team, staying as healthy as possible, trying complementary therapies, maintaining a sense of humor, working at being optimistic.
http://www.seniornet.org/php/default.php?ClassOrgID=5337&PageID=5541

Chronic Disease: Forming Healthy Relationships
Advice for doctors and health workers on treatment and support of chronic ill patients. [PDF]
http://www.buchholzmedgroup.com/articles/PDF/Chronic.pdf

Chronic Disease Management
British Columbia resources for physicians, patients and researchers. Includes success stories, self-management program, reports, research and Chronic Care Model.
http://www.healthservices.gov.bc.ca/cdm/

Chronic Disease Management
Model based on cooperation between providers to improve patient health and outcome. The Calgary Health Region also advises on regional strategy, community care coordinators, and patient class details.
http://www.calgaryhealthregion.ca/cdm/

Chronic Disease Prevention
Overview by National Center (USA) offers statistics, state programs, risk surveillance and risk factors per state.
http://www.cdc.gov/nccdphp/overview.htm

Chronic Disease: Prevention and Management
Calgary Health Region to host its second international conference from October 29 to November 1, 2007. Registration opens October 2006.
http://www.cdmcalgary.ca

Chronic Disease Surveillance in Canada
Background paper also proposes multi-partnered data base renewal (2003). [PDF]
http://www.phac-aspc.gc.ca/csc-ccs/pdf/hscchronic_disease_surveillance_background_paper_e.pdf

Chronic Health Conditions not a Barrier to Successful Aging
Advice on 'successful aging' with good management of several chronic conditions by HealthLink, the Medical College of Wisconsin.
http://healthlink.mcw.edu/article/1031002459.html

Chronic Illness
Journal providing a forum in which researchers from a wide range of disciplines, clinicians, policy makers, and people living with chronic illness come together to clarify the common principles underlying the experience and management of chronic illness. Has current and past issues.
http://chi.sagepub.com/

Chronic Illness: Acceptance Is the First Step Toward Healing
Short description of the day to day acceptance process.
http://www.mult-sclerosis.org/news/Oct1999/AcceptingChronicIllness.html

Chronic Illness Alliance Inc.
A representative body for Australian organizations. Promotes details of campaigns and activities, and offers news, articles and information.
http://www.chronicillness.org.au/

Chronic Illness Coping
Lists articles including lessons from Christopher Reeve, treatment of whole person, psychological control, and coping techniques.
http://www.mindpub.com/topic16.htm

Chronic Illness Tips
A personal account of strategies for daily living.
http://showcase.netins.net/web/fmd/chronic/

Coping with a Chronic Illness in your Family
Advice to family members, including communication, financial matters, independence and taking charge.
http://www.eldercareadvocates.com/pages/art22.htm

Coping with Chronic Illness
An academic paper discusses illness in terms of stages, with a description of each in terms of its relevance to patients.
http://www.alpineguild.com/COPING%20WITH%20CHRONIC%20ILLNESS.html

Coping with Chronic Illness
Offers links to patient information and publications by the National Institutes of Health.
http://www.nlm.nih.gov/medlineplus/copingwithchronicillness.html

Coping with Chronic Illness
The Fathers Network on how to deal with physical, emotional and spiritual aspects. Applies to anyone with a longterm disease.
http://www.fathersnetwork.org/647.html?page=647&SESSION=ab227735c199fab81f0a5e757533e8d4&s=0

A Day in a Life with Chronic Illness
A personal account of daily events aims to promote better understanding.
http://members.shaw.ca/zonaszone/illness/life.html

Diet, Nutrition and the Prevention of Chronic Diseases
Combined World Health Organization and Food and Agriculture Organization expert report on prevention of obesity, diabetes, cardiovascular diseases, cancer, dental diseases and osteoporosis. [PDF]
http://www.who.int/hpr/NPH/docs/who_fao_expert_report.pdf

Expert Patients Programme for Long-term Patients
Self-management course for confidence, skills and knowledge to manage chronic health conditions. Provides newsletter, explanation of program, people's views.
http://www.expertpatients.nhs.uk/

Guidance for People Facing Serious Illness
Handbook gives short, practical advice how to handle serious illness and dying.
http://www.mywhatever.com/cifwriter/library/mortals/mor0.html

Health Action Network
A volunteer non-profit organization helping to rehabilitate people with chronic mental or physical illness into the community. Includes details of training and resources.
http://www.procovery.com

Health Issues Unmasked
A weblog dedicated to exploring the issues behind the diagnoses, the statistics, and behind the headlines on chronic illness, health policy, and complementary and alternative medicine. By a journalist, Jacqueline L. Jones.
http://healthissuesunmasked.wordpress.com

Household Management Questions for Others with Chronic Illness
Practical advice on adjusting expectations, cleaning, time management and recommended books. Short thread in The New Homemaker.
http://www.thenewhomemaker.com/node/68558

Illness, Disability and Social Inclusion
Evaluates policies on education, social security, employment, anti-discrimination, and independence. From the European Foundation for the Improvement of Living and Working Conditions. [PDF]
http://www.eurofound.eu.int/publications/files/EF0335EN.pdf

Improving Chronic Illness Care
Research and resources, including a model to promote interaction between patient and care givers. Essential elements are the community, self-management support, decision support and clinical information systems.
http://www.improvingchroniccare.org/

It's Your Life
E-book on chronic disease management available for free online reading or download.
http://www.stormpages.com/sbhagwat

Learning to Cope with Chronic Illness
Practical advice to patients and significant others.
http://seniors-site.com/coping/chronic.html

Learning to Live with a Chronic Condition
Patient advice on communication with the health team, deciding on a treatment plan, and minimizing costs. From the Lifepath Information Series.
https://www.mylifepath.com/producer/documentlibrary/MR15300.pdf?sec=medsup&pg=help

Living with Chronic Illness
Personal advice on making adjustments and maintaining hope.
http://aces_autoimmune.tripod.com/copingb.htm

Living with Chronic Illness and Disease
Personal perspective on living with chronic disease. Articles cover getting through each day, relaxations, tips, work, stories.
http://www.chroniclife.com

Living with Chronic Illness and Pain
Explains how lifestyle changes can be effective in self-managing a condition. From Men's Health Peer Education.
http://www.dva.gov.au/health/menshealth/12_chronic_illness.htm

Living with Long Term Illness
Tips and ideas on dealing with a chronic condition in daily life. Personal site.
http://www.xs4all.nl/~nvwagen/english/

Managing Long Term Conditions (Chronic Disease Management)
A National Primary and Care Trust Development Funds program aimed to produce personalized care plans involving all medical and associated disciplines. No longer updated, it still contains valuable information for health care professionals.
http://www.natpact.nhs.uk/cms/2.php

Managing your Chronic Illness
British Columbia's patient information with links to programs.
http://www.healthservices.gov.bc.ca/cdm/patients/managing.html

Next steps after your diagnosis: finding information and support
Consumer health information for people with a disease or chronic condition on how to obtain reliable treatment information by the Agency for Healthcare Research and Quality (USA).
http://www.ahrq.gov/consumer/diaginfo.htm

Palliative Care Council of South Australia
Resources to comfort, relieve pain and distress for people who are dying, and to support parents, families and friends in approaching death and healing grief.
http://www.pallcare.asn.au/

Patient Self-Management - Chronic Disease Care
Overview of research and publications showing evidence patient self-management interventions lead to improved health status, increased patient satisfaction and reductions in hospital and emergency room costs, listed by the Californian Health Care Foundation.
http://www.chcf.org/topics/chronicdisease/index.cfm?subtopic=CL613

Poem, Pain Management, Chronic Illness
Poem about coping with pain using relaxation and imagery.
http://www.lehman.cuny.edu/faculty/jfleitas/bandaides/pain.html

Preventing Chronic Disease: Public Health Research, Practice and Policy
A peer-reviewed Journal by the National Center for Chronic Disease Prevention and Health Promotion in the United States. Contains essays, original research, special topics, case studies. Also available as PDF.
http://www.cdc.gov/pcd/

Preventing Disability in the Elderly With Chronic Disease
Discusses outcome of patient self management program. Education and lifestyle changes improve health, preserve functions and reduce costs. Also in PDF (published in 2002).
http://www.ahcpr.gov/research/elderdis.htm

Report of the Working Group on Long-Term Care
US Department of Labor, Advisory Council Report to recommend policy changes and education on broad scope of findings.
http://www.dol.gov/ebsa/publications/report2.htm

Stanford Self-Management Programs
Center develops, evaluates, and disseminates community-based, peer-led, programs for people with all kinds of chronic diseases. Part of School of Medicine, Stanford University, California.
http://patienteducation.stanford.edu/programs/

Ten Steps for Coping with a Chronic Condition
Harvard Health Publication Letter. Patient oriented advice.
http://www.health.harvard.edu/newsweek/10_steps_for_coping_with_a_chronic_condition.htm

Yoga For Chronic Illness
Article explains how yoga helps to maintain and restore health by stretching and breathing.
http://www.cancerlinks.com/Yoga/illness.html